The Data Artifacts Glossary: a community-based repository for bias on health datasets

Abstract Background The deployment of Artificial Intelligence (AI) in healthcare has the potential to transform patient care through improved diagnostics, personalized treatment plans, and more efficient resource management. However, the effectiveness and fairness of AI are critically dependent on t...

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Main Authors: Rodrigo R. Gameiro, Naira Link Woite, Christopher M. Sauer, Sicheng Hao, Chrystinne Oliveira Fernandes, Anna E. Premo, Alice Rangel Teixeira, Isabelle Resli, An-Kwok Ian Wong, Leo Anthony Celi
Format: Article
Language:English
Published: BMC 2025-02-01
Series:Journal of Biomedical Science
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Online Access:https://doi.org/10.1186/s12929-024-01106-6
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author Rodrigo R. Gameiro
Naira Link Woite
Christopher M. Sauer
Sicheng Hao
Chrystinne Oliveira Fernandes
Anna E. Premo
Alice Rangel Teixeira
Isabelle Resli
An-Kwok Ian Wong
Leo Anthony Celi
author_facet Rodrigo R. Gameiro
Naira Link Woite
Christopher M. Sauer
Sicheng Hao
Chrystinne Oliveira Fernandes
Anna E. Premo
Alice Rangel Teixeira
Isabelle Resli
An-Kwok Ian Wong
Leo Anthony Celi
author_sort Rodrigo R. Gameiro
collection DOAJ
description Abstract Background The deployment of Artificial Intelligence (AI) in healthcare has the potential to transform patient care through improved diagnostics, personalized treatment plans, and more efficient resource management. However, the effectiveness and fairness of AI are critically dependent on the data it learns from. Biased datasets can lead to AI outputs that perpetuate disparities, particularly affecting social minorities and marginalized groups. Objective This paper introduces the “Data Artifacts Glossary”, a dynamic, open-source framework designed to systematically document and update potential biases in healthcare datasets. The aim is to provide a comprehensive tool that enhances the transparency and accuracy of AI applications in healthcare and contributes to understanding and addressing health inequities. Methods Utilizing a methodology inspired by the Delphi method, a diverse team of experts conducted iterative rounds of discussions and literature reviews. The team synthesized insights to develop a comprehensive list of bias categories and designed the glossary’s structure. The Data Artifacts Glossary was piloted using the MIMIC-IV dataset to validate its utility and structure. Results The Data Artifacts Glossary adopts a collaborative approach modeled on successful open-source projects like Linux and Python. Hosted on GitHub, it utilizes robust version control and collaborative features, allowing stakeholders from diverse backgrounds to contribute. Through a rigorous peer review process managed by community members, the glossary ensures the continual refinement and accuracy of its contents. The implementation of the Data Artifacts Glossary with the MIMIC-IV dataset illustrates its utility. It categorizes biases, and facilitates their identification and understanding. Conclusion The Data Artifacts Glossary serves as a vital resource for enhancing the integrity of AI applications in healthcare by providing a mechanism to recognize and mitigate dataset biases before they impact AI outputs. It not only aids in avoiding bias in model development but also contributes to understanding and addressing the root causes of health disparities.
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institution Kabale University
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spelling doaj-art-11b22dc444284626a5789a7067a3ef452025-02-09T12:48:55ZengBMCJournal of Biomedical Science1423-01272025-02-013211910.1186/s12929-024-01106-6The Data Artifacts Glossary: a community-based repository for bias on health datasetsRodrigo R. Gameiro0Naira Link Woite1Christopher M. Sauer2Sicheng Hao3Chrystinne Oliveira Fernandes4Anna E. Premo5Alice Rangel Teixeira6Isabelle Resli7An-Kwok Ian Wong8Leo Anthony Celi9Laboratory for Computational Physiology, Massachusetts Institute of TechnologyLaboratory for Computational Physiology, Massachusetts Institute of TechnologyLaboratory for Computational Physiology, Massachusetts Institute of TechnologyDivision of Pulmonary, Allergy, and Critical Care Medicine, Duke UniversityLaboratory for Computational Physiology, Massachusetts Institute of TechnologyLearning Research and Development Center, University of PittsburghDepartment of Philosophy, Universitat Autónoma de BarcelonaSchool of Electrical Engineering and Computer Science, Oregon State UniversityDivision of Pulmonary, Allergy, and Critical Care Medicine, Duke UniversityLaboratory for Computational Physiology, Massachusetts Institute of TechnologyAbstract Background The deployment of Artificial Intelligence (AI) in healthcare has the potential to transform patient care through improved diagnostics, personalized treatment plans, and more efficient resource management. However, the effectiveness and fairness of AI are critically dependent on the data it learns from. Biased datasets can lead to AI outputs that perpetuate disparities, particularly affecting social minorities and marginalized groups. Objective This paper introduces the “Data Artifacts Glossary”, a dynamic, open-source framework designed to systematically document and update potential biases in healthcare datasets. The aim is to provide a comprehensive tool that enhances the transparency and accuracy of AI applications in healthcare and contributes to understanding and addressing health inequities. Methods Utilizing a methodology inspired by the Delphi method, a diverse team of experts conducted iterative rounds of discussions and literature reviews. The team synthesized insights to develop a comprehensive list of bias categories and designed the glossary’s structure. The Data Artifacts Glossary was piloted using the MIMIC-IV dataset to validate its utility and structure. Results The Data Artifacts Glossary adopts a collaborative approach modeled on successful open-source projects like Linux and Python. Hosted on GitHub, it utilizes robust version control and collaborative features, allowing stakeholders from diverse backgrounds to contribute. Through a rigorous peer review process managed by community members, the glossary ensures the continual refinement and accuracy of its contents. The implementation of the Data Artifacts Glossary with the MIMIC-IV dataset illustrates its utility. It categorizes biases, and facilitates their identification and understanding. Conclusion The Data Artifacts Glossary serves as a vital resource for enhancing the integrity of AI applications in healthcare by providing a mechanism to recognize and mitigate dataset biases before they impact AI outputs. It not only aids in avoiding bias in model development but also contributes to understanding and addressing the root causes of health disparities.https://doi.org/10.1186/s12929-024-01106-6BiasHealth equityDatasetData Artifacts GlossaryArtificial intelligenceMachine learning
spellingShingle Rodrigo R. Gameiro
Naira Link Woite
Christopher M. Sauer
Sicheng Hao
Chrystinne Oliveira Fernandes
Anna E. Premo
Alice Rangel Teixeira
Isabelle Resli
An-Kwok Ian Wong
Leo Anthony Celi
The Data Artifacts Glossary: a community-based repository for bias on health datasets
Journal of Biomedical Science
Bias
Health equity
Dataset
Data Artifacts Glossary
Artificial intelligence
Machine learning
title The Data Artifacts Glossary: a community-based repository for bias on health datasets
title_full The Data Artifacts Glossary: a community-based repository for bias on health datasets
title_fullStr The Data Artifacts Glossary: a community-based repository for bias on health datasets
title_full_unstemmed The Data Artifacts Glossary: a community-based repository for bias on health datasets
title_short The Data Artifacts Glossary: a community-based repository for bias on health datasets
title_sort data artifacts glossary a community based repository for bias on health datasets
topic Bias
Health equity
Dataset
Data Artifacts Glossary
Artificial intelligence
Machine learning
url https://doi.org/10.1186/s12929-024-01106-6
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