Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendations

Revising public health policy based on new data does not happen automatically. This is acutely relevant to the now undeniable evidence that many diseases develop differently between the sexes and may also be affected by gender. Current health and medical practices across the globe generally fail to...

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Main Authors: Sue Haupt, Cheryl Carcel, Lily Halliday, Saraid Billiards, Lyn Carson, Kyle Redman, Scott Lappan-Newton, Karin R. Aubrey, Xander Bickendorf, Jane E. Bourke, Michael Buchert, Jessica Da Gama Duarte, Ayan Dasvarma, Thomas F. E. Drake-Brockman, Kerryn Drysdale, Stephen C. C. Dymock, Laura N. Eadie, Melanie Eckersley-Maslin, Moritz Falk Eissmann, James Fazio, Bridget G. Haire, Melinda Holder, Nicole Kleppe, Ken Knight, Jonathan Mauclair, Celine Northcott, Brian G. G. O. Oliver, Tracy A. O'Mara, Ken Pang, Steven Philpot, Tertia D. Purves-Tyson, Jacob Stewart-Olsen, Lauren Ursich, Natalia Vukelic, Marina H. Yakou, Bronwyn Graham, Severine Lamon, Rachel Huxley, Kelly Thompson, Keziah Bennett-Brook, Christine Jenkins, Zoe Wainer, Mark Woodward, Louise Chappell, Robyn Norton
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-02-01
Series:Frontiers in Public Health
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Online Access:https://www.frontiersin.org/articles/10.3389/fpubh.2024.1522213/full
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author Sue Haupt
Cheryl Carcel
Lily Halliday
Saraid Billiards
Lyn Carson
Kyle Redman
Scott Lappan-Newton
Karin R. Aubrey
Xander Bickendorf
Jane E. Bourke
Michael Buchert
Jessica Da Gama Duarte
Ayan Dasvarma
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Kerryn Drysdale
Stephen C. C. Dymock
Laura N. Eadie
Laura N. Eadie
Melanie Eckersley-Maslin
Melanie Eckersley-Maslin
Melanie Eckersley-Maslin
Moritz Falk Eissmann
James Fazio
Bridget G. Haire
Melinda Holder
Nicole Kleppe
Ken Knight
Jonathan Mauclair
Celine Northcott
Brian G. G. O. Oliver
Tracy A. O'Mara
Ken Pang
Steven Philpot
Tertia D. Purves-Tyson
Jacob Stewart-Olsen
Lauren Ursich
Natalia Vukelic
Marina H. Yakou
Bronwyn Graham
Bronwyn Graham
Severine Lamon
Rachel Huxley
Kelly Thompson
Kelly Thompson
Keziah Bennett-Brook
Christine Jenkins
Christine Jenkins
Zoe Wainer
Zoe Wainer
Mark Woodward
Mark Woodward
Louise Chappell
Robyn Norton
Robyn Norton
author_facet Sue Haupt
Cheryl Carcel
Lily Halliday
Saraid Billiards
Lyn Carson
Kyle Redman
Scott Lappan-Newton
Karin R. Aubrey
Xander Bickendorf
Jane E. Bourke
Michael Buchert
Jessica Da Gama Duarte
Ayan Dasvarma
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Kerryn Drysdale
Stephen C. C. Dymock
Laura N. Eadie
Laura N. Eadie
Melanie Eckersley-Maslin
Melanie Eckersley-Maslin
Melanie Eckersley-Maslin
Moritz Falk Eissmann
James Fazio
Bridget G. Haire
Melinda Holder
Nicole Kleppe
Ken Knight
Jonathan Mauclair
Celine Northcott
Brian G. G. O. Oliver
Tracy A. O'Mara
Ken Pang
Steven Philpot
Tertia D. Purves-Tyson
Jacob Stewart-Olsen
Lauren Ursich
Natalia Vukelic
Marina H. Yakou
Bronwyn Graham
Bronwyn Graham
Severine Lamon
Rachel Huxley
Kelly Thompson
Kelly Thompson
Keziah Bennett-Brook
Christine Jenkins
Christine Jenkins
Zoe Wainer
Zoe Wainer
Mark Woodward
Mark Woodward
Louise Chappell
Robyn Norton
Robyn Norton
author_sort Sue Haupt
collection DOAJ
description Revising public health policy based on new data does not happen automatically. This is acutely relevant to the now undeniable evidence that many diseases develop differently between the sexes and may also be affected by gender. Current health and medical practices across the globe generally fail to cater for sex and gender effects in common diseases. Inadequate policy frameworks to guide the comprehensive inclusion of sex and gender in research jeopardises scientific rigour and ultimately the practices they underpin. To ensure that Australian health and medical research is fit-for-purpose, we realised that potent initiatives would be necessary to expedite strategic reframing of thought and behaviour. Here we report on our innovative engagement of end-users for democratic self-determined policy reform to guide health and medical research, based on robust data. We draw upon our specific study to outline seven key steps that can be adopted to accelerate effective change, across a breadth of evidence-based initiatives to reform health policies.
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spelling doaj-art-31179767c6bc467d902b01cf4fbd0d962025-02-12T07:26:23ZengFrontiers Media S.A.Frontiers in Public Health2296-25652025-02-011210.3389/fpubh.2024.15222131522213Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendationsSue Haupt0Cheryl Carcel1Lily Halliday2Saraid Billiards3Lyn Carson4Kyle Redman5Scott Lappan-Newton6Karin R. Aubrey7Xander Bickendorf8Jane E. Bourke9Michael Buchert10Jessica Da Gama Duarte11Ayan Dasvarma12Thomas F. E. Drake-Brockman13Thomas F. E. Drake-Brockman14Thomas F. E. Drake-Brockman15Thomas F. E. Drake-Brockman16Kerryn Drysdale17Stephen C. C. Dymock18Laura N. Eadie19Laura N. Eadie20Melanie Eckersley-Maslin21Melanie Eckersley-Maslin22Melanie Eckersley-Maslin23Moritz Falk Eissmann24James Fazio25Bridget G. Haire26Melinda Holder27Nicole Kleppe28Ken Knight29Jonathan Mauclair30Celine Northcott31Brian G. G. O. Oliver32Tracy A. O'Mara33Ken Pang34Steven Philpot35Tertia D. Purves-Tyson36Jacob Stewart-Olsen37Lauren Ursich38Natalia Vukelic39Marina H. Yakou40Bronwyn Graham41Bronwyn Graham42Severine Lamon43Rachel Huxley44Kelly Thompson45Kelly Thompson46Keziah Bennett-Brook47Christine Jenkins48Christine Jenkins49Zoe Wainer50Zoe Wainer51Mark Woodward52Mark Woodward53Louise Chappell54Robyn Norton55Robyn Norton56The George Institute for Global Health, Women’s Health Program, Centre for Sex and Gender Equity in Health and Medicine, University of New South Wales (UNSW), Sydney, NSW, AustraliaThe George Institute for Global Health, Brain Health Program, UNSW, Sydney, NSW, AustraliaAustralian Human Rights Institute, UNSW, Sydney, NSW, AustraliaAssociation of Australian Medical Research Institute, Melbourne, VIC, AustraliaThe newDemocracy Foundation, Sydney, NSW, AustraliaThe newDemocracy Foundation, Sydney, NSW, AustraliaGauge Consulting, Otford, NSW, AustraliaPain Management Research Laboratories, Kolling Institute, Faculty of Medicine and Health, University of Sydney, Camperdown, NSW, AustraliaTelethon Kids Institute, Nedlands, WA, AustraliaBiomedicine Discovery Institute, Monash University, Clayton, VIC, Australia0Olivia Newton-John Cancer Research Institute, La Trobe University School of Cancer Medicine, Heidelberg, VIC, Australia0Olivia Newton-John Cancer Research Institute, La Trobe University School of Cancer Medicine, Heidelberg, VIC, AustraliaBiomedicine Discovery Institute, Monash University, Clayton, VIC, Australia1Anaesthesia and Pain Medicine, Perth Children’s Hospital, Nedlands, WA, Australia2Perioperative Medicine Team, The Kids Research Institute Australia, Nedlands, WA, Australia3Medical School, The University of Western Australia, Perth, WA, Australia4Institute for Paediatric Perioperative Excellence, The University of Western Australia, Perth, WA, Australia5Centre for Social Research in Health, UNSW, Kensington, NSW, AustraliaTelethon Kids Institute, Nedlands, WA, Australia6Precision Cancer Medicine Theme, South Australian Health and Medical Research Institute, Adelaide, SA, Australia7Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, SA, Australia8Peter MacCallum Cancer Centre, Melbourne, VIC, Australia9Sir Peter MacCallum Department of Oncology, The University of Melbourne, Melbourne, VIC, Australia0Department of Anatomy and Physiology, The University of Melbourne, Melbourne, VIC, Australia0Olivia Newton-John Cancer Research Institute, La Trobe University School of Cancer Medicine, Heidelberg, VIC, AustraliaTelethon Kids Institute, Nedlands, WA, Australia1Kirby Institute, UNSW, Kensington, NSW, Australia2Westmead Institute for Medical Research, Westmead, WA, Australia3Murdoch Children’s Research Institute, Melbourne, VIC, Australia3Murdoch Children’s Research Institute, Melbourne, VIC, Australia4Monash University, Clayton Campus, Clayton, VIC, Australia5South Australian Health and Medical Research Institute, Adelaide, SA, Australia6The Woolcock Institute of Medical Research, Macquarie University, University of Technology Sydney, Sydney, NSW, Australia7QIMR Berghofer Medical Research Institute, Herston, QLD, Australia3Murdoch Children’s Research Institute, Melbourne, VIC, Australia1Kirby Institute, UNSW, Kensington, NSW, Australia8Neuroscience Research Australia, Sydney, Australia; Discipline of Psychiatry and Mental Health, UNSW, Sydney, NSW, AustraliaTelethon Kids Institute, Nedlands, WA, Australia9The Florey Department of Neuroscience and Mental Health, University of Melbourne, Parkville, VIC, Australia0Olivia Newton-John Cancer Research Institute, La Trobe University School of Cancer Medicine, Heidelberg, VIC, Australia0Olivia Newton-John Cancer Research Institute, La Trobe University School of Cancer Medicine, Heidelberg, VIC, AustraliaThe George Institute for Global Health, Women’s Health Program, Centre for Sex and Gender Equity in Health and Medicine, University of New South Wales (UNSW), Sydney, NSW, Australia0School of Psychology, UNSW, Sydney, NSW, Australia1Faculty of Health, Deakin University, Burwood, VIC, Australia1Faculty of Health, Deakin University, Burwood, VIC, AustraliaThe George Institute for Global Health, Women’s Health Program, Centre for Sex and Gender Equity in Health and Medicine, University of New South Wales (UNSW), Sydney, NSW, Australia2Nepean and Blue Mountains Local Health District, Sydney, NSW, Australia3The George Institute for Global Health, Guunu-maana (Heal) Aboriginal & Torres Strait Islander Health, UNSW, Sydney, NSW, Australia4The George Institute for Global Health, Respiratory Program, UNSW, Sydney, NSW, Australia5Faculty of Medicine, UNSW, Sydney, NSW, Australia6Faculty of Medicine, Dentistry and Health Science, University of Melbourne, Melbourne, VIC, Australia7Public Health Division, The Victorian Department of Health, Melbourne, VIC, Australia8The George Institute for Global Health, Senior Professorial Unit, UNSW, Sydney, NSW, Australia9The George Institute for Global Health, School of Public Health, Imperial College London, London, United KingdomThe George Institute for Global Health, Brain Health Program, UNSW, Sydney, NSW, AustraliaThe George Institute for Global Health, Women’s Health Program, Centre for Sex and Gender Equity in Health and Medicine, University of New South Wales (UNSW), Sydney, NSW, Australia9The George Institute for Global Health, School of Public Health, Imperial College London, London, United KingdomRevising public health policy based on new data does not happen automatically. This is acutely relevant to the now undeniable evidence that many diseases develop differently between the sexes and may also be affected by gender. Current health and medical practices across the globe generally fail to cater for sex and gender effects in common diseases. Inadequate policy frameworks to guide the comprehensive inclusion of sex and gender in research jeopardises scientific rigour and ultimately the practices they underpin. To ensure that Australian health and medical research is fit-for-purpose, we realised that potent initiatives would be necessary to expedite strategic reframing of thought and behaviour. Here we report on our innovative engagement of end-users for democratic self-determined policy reform to guide health and medical research, based on robust data. We draw upon our specific study to outline seven key steps that can be adopted to accelerate effective change, across a breadth of evidence-based initiatives to reform health policies.https://www.frontiersin.org/articles/10.3389/fpubh.2024.1522213/fullpublic health and medical research policyhealth and medical research equityinnovative methodologyevidence-based changedemocratic policy reformsex-gender
spellingShingle Sue Haupt
Cheryl Carcel
Lily Halliday
Saraid Billiards
Lyn Carson
Kyle Redman
Scott Lappan-Newton
Karin R. Aubrey
Xander Bickendorf
Jane E. Bourke
Michael Buchert
Jessica Da Gama Duarte
Ayan Dasvarma
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Thomas F. E. Drake-Brockman
Kerryn Drysdale
Stephen C. C. Dymock
Laura N. Eadie
Laura N. Eadie
Melanie Eckersley-Maslin
Melanie Eckersley-Maslin
Melanie Eckersley-Maslin
Moritz Falk Eissmann
James Fazio
Bridget G. Haire
Melinda Holder
Nicole Kleppe
Ken Knight
Jonathan Mauclair
Celine Northcott
Brian G. G. O. Oliver
Tracy A. O'Mara
Ken Pang
Steven Philpot
Tertia D. Purves-Tyson
Jacob Stewart-Olsen
Lauren Ursich
Natalia Vukelic
Marina H. Yakou
Bronwyn Graham
Bronwyn Graham
Severine Lamon
Rachel Huxley
Kelly Thompson
Kelly Thompson
Keziah Bennett-Brook
Christine Jenkins
Christine Jenkins
Zoe Wainer
Zoe Wainer
Mark Woodward
Mark Woodward
Louise Chappell
Robyn Norton
Robyn Norton
Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendations
Frontiers in Public Health
public health and medical research policy
health and medical research equity
innovative methodology
evidence-based change
democratic policy reform
sex-gender
title Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendations
title_full Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendations
title_fullStr Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendations
title_full_unstemmed Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendations
title_short Catalysing change in health and medical research policy: an Australian case study of deliberative democracy to reform sex and gender policy recommendations
title_sort catalysing change in health and medical research policy an australian case study of deliberative democracy to reform sex and gender policy recommendations
topic public health and medical research policy
health and medical research equity
innovative methodology
evidence-based change
democratic policy reform
sex-gender
url https://www.frontiersin.org/articles/10.3389/fpubh.2024.1522213/full
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