Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative Evaluation

Edith K Wakida,1,2 Celestino Obua,2 Godfrey Zari Rukundo,3 Mary Samantha,2 Samuel Maling,4 Christine K Karungi,2 Zohray M Talib,1 Jessica Haberer,5,6 Stephen J Bartels5,6 1Department of Medical Education, California University of Science and Medicine, Colton, California, USA; 2Department of Research...

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Main Authors: Wakida EK, Obua C, Rukundo GZ, Samantha M, Maling S, Karungi CK, Talib ZM, Haberer J, Bartels SJ
Format: Article
Language:English
Published: Dove Medical Press 2025-02-01
Series:Journal of Multidisciplinary Healthcare
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Online Access:https://www.dovepress.com/internal-facilitation-by-health-assistants-for-the-who-lay-health-work-peer-reviewed-fulltext-article-JMDH
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author Wakida EK
Obua C
Rukundo GZ
Samantha M
Maling S
Karungi CK
Talib ZM
Haberer J
Bartels SJ
author_facet Wakida EK
Obua C
Rukundo GZ
Samantha M
Maling S
Karungi CK
Talib ZM
Haberer J
Bartels SJ
author_sort Wakida EK
collection DOAJ
description Edith K Wakida,1,2 Celestino Obua,2 Godfrey Zari Rukundo,3 Mary Samantha,2 Samuel Maling,4 Christine K Karungi,2 Zohray M Talib,1 Jessica Haberer,5,6 Stephen J Bartels5,6 1Department of Medical Education, California University of Science and Medicine, Colton, California, USA; 2Department of Research and Development, Alpha Center for Research Administration, Mbarara, Uganda; 3Department of Psychiatry and Behavioral Neurosciences, McMaster University, Hamilton, Ontario, Canada; 4Department of Psychiatry, Mbarara University of Science and Technology, Mbarara, Uganda; 5Department of Internal Medicine, Massachusetts General Hospital, Boston, Massachusetts, USA; 6Harvard Medical School, Harvard University, Boston, Massachusetts, USACorrespondence: Edith K Wakida, Email [email protected]: Dementia is characterized by cognitive symptoms like memory loss, difficulty with language, and impaired judgment, alongside behavioral and psychological symptoms such as depression, anxiety, and aggression. Early diagnosis and tailored care are essential for managing these symptoms, improving quality of life, and reducing caregiver burden. Dementia affects a substantial portion of older people globally, especially in low- and middle-income countries like Uganda, where rural healthcare systems face challenges in dementia care access. To address these needs, we gathered key stakeholders’ perspectives on a culturally tailored model employing lay health workers, supported by health assistants as internal facilitators, to implement the World Health Organization dementia toolkit in rural communities.Methods: We conducted a formative qualitative study, utilizing one-on-one interviews with health assistants, district health team members, and primary healthcare providers in rural Uganda. We solicited their perspectives on implementing the World Health Organization dementia toolkit at the village level. The integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) framework guided data collection and analysis, focusing on implementation support, process improvement, and practice sustainment.Results: Strong support was found for health assistants’ roles in facilitating lay health worker-led dementia care at the community level. Health assistants’ familiarity with lay health workers and pre-established structures were considered facilitating factors. Key challenges included knowledge gaps in dementia care and limited resources. Participants emphasized the importance of training, mentorship, and standardized reporting tools to enhance the implementation of dementia care. They recommended providing the health assistants with job guides, updated reporting templates to collect dementia indicators, and orientation on what they should do during internal facilitation with the lay health workers using the dementia toolkit.Conclusion: Health assistants’ internal facilitation provides a promising strategy for scaling dementia care in rural Uganda by leveraging community-based lay health workers. Addressing identified knowledge gaps, communication needs, and resource constraints will be essential to sustaining dementia care interventions in these communities.Keywords: dementia care, internal facilitation, lay health workers, Uganda, rural health, i-PARIHS framework
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publishDate 2025-02-01
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spelling doaj-art-3620bb7d6b08484eb8b7ebead4c9f74c2025-02-06T16:40:24ZengDove Medical PressJournal of Multidisciplinary Healthcare1178-23902025-02-01Volume 1857959099901Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative EvaluationWakida EKObua CRukundo GZSamantha MMaling SKarungi CKTalib ZMHaberer JBartels SJEdith K Wakida,1,2 Celestino Obua,2 Godfrey Zari Rukundo,3 Mary Samantha,2 Samuel Maling,4 Christine K Karungi,2 Zohray M Talib,1 Jessica Haberer,5,6 Stephen J Bartels5,6 1Department of Medical Education, California University of Science and Medicine, Colton, California, USA; 2Department of Research and Development, Alpha Center for Research Administration, Mbarara, Uganda; 3Department of Psychiatry and Behavioral Neurosciences, McMaster University, Hamilton, Ontario, Canada; 4Department of Psychiatry, Mbarara University of Science and Technology, Mbarara, Uganda; 5Department of Internal Medicine, Massachusetts General Hospital, Boston, Massachusetts, USA; 6Harvard Medical School, Harvard University, Boston, Massachusetts, USACorrespondence: Edith K Wakida, Email [email protected]: Dementia is characterized by cognitive symptoms like memory loss, difficulty with language, and impaired judgment, alongside behavioral and psychological symptoms such as depression, anxiety, and aggression. Early diagnosis and tailored care are essential for managing these symptoms, improving quality of life, and reducing caregiver burden. Dementia affects a substantial portion of older people globally, especially in low- and middle-income countries like Uganda, where rural healthcare systems face challenges in dementia care access. To address these needs, we gathered key stakeholders’ perspectives on a culturally tailored model employing lay health workers, supported by health assistants as internal facilitators, to implement the World Health Organization dementia toolkit in rural communities.Methods: We conducted a formative qualitative study, utilizing one-on-one interviews with health assistants, district health team members, and primary healthcare providers in rural Uganda. We solicited their perspectives on implementing the World Health Organization dementia toolkit at the village level. The integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) framework guided data collection and analysis, focusing on implementation support, process improvement, and practice sustainment.Results: Strong support was found for health assistants’ roles in facilitating lay health worker-led dementia care at the community level. Health assistants’ familiarity with lay health workers and pre-established structures were considered facilitating factors. Key challenges included knowledge gaps in dementia care and limited resources. Participants emphasized the importance of training, mentorship, and standardized reporting tools to enhance the implementation of dementia care. They recommended providing the health assistants with job guides, updated reporting templates to collect dementia indicators, and orientation on what they should do during internal facilitation with the lay health workers using the dementia toolkit.Conclusion: Health assistants’ internal facilitation provides a promising strategy for scaling dementia care in rural Uganda by leveraging community-based lay health workers. Addressing identified knowledge gaps, communication needs, and resource constraints will be essential to sustaining dementia care interventions in these communities.Keywords: dementia care, internal facilitation, lay health workers, Uganda, rural health, i-PARIHS frameworkhttps://www.dovepress.com/internal-facilitation-by-health-assistants-for-the-who-lay-health-work-peer-reviewed-fulltext-article-JMDHdementia careinternal facilitationlay health workersugandarural healthi-parihs framework
spellingShingle Wakida EK
Obua C
Rukundo GZ
Samantha M
Maling S
Karungi CK
Talib ZM
Haberer J
Bartels SJ
Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative Evaluation
Journal of Multidisciplinary Healthcare
dementia care
internal facilitation
lay health workers
uganda
rural health
i-parihs framework
title Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative Evaluation
title_full Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative Evaluation
title_fullStr Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative Evaluation
title_full_unstemmed Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative Evaluation
title_short Internal Facilitation by Health Assistants for the “WHO Lay Health Worker Dementia Care” in Rural Uganda: A Formative Evaluation
title_sort internal facilitation by health assistants for the ldquo who lay health worker dementia care rdquo in rural uganda a formative evaluation
topic dementia care
internal facilitation
lay health workers
uganda
rural health
i-parihs framework
url https://www.dovepress.com/internal-facilitation-by-health-assistants-for-the-who-lay-health-work-peer-reviewed-fulltext-article-JMDH
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