The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis Bullosa
Epidermolysis bullosa (EB) is an inherited disease that causes widespread symptoms characterized by extreme epithelial fragility. This study examined traditional, complementary, and integrative medicine (TCIM) usage among EB patients referred to clinics at Shiraz University of Medical Sciences betw...
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| Format: | Article |
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Tehran University of Medical Sciences
2024-12-01
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| Series: | Traditional and Integrative Medicine |
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| Online Access: | https://jtim.tums.ac.ir/index.php/jtim/article/view/1309 |
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| author | Mohammad Mahdi Parvizi Nasrin Saki Ehsan Amiri-Ardekani Parisa Ahmadfard Mehdi Pasalar |
| author_facet | Mohammad Mahdi Parvizi Nasrin Saki Ehsan Amiri-Ardekani Parisa Ahmadfard Mehdi Pasalar |
| author_sort | Mohammad Mahdi Parvizi |
| collection | DOAJ |
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Epidermolysis bullosa (EB) is an inherited disease that causes widespread symptoms characterized by extreme epithelial fragility. This study examined traditional, complementary, and integrative medicine (TCIM) usage among EB patients referred to clinics at Shiraz University of Medical Sciences between 2019 and 2020. We enrolled the patients with EB whose diseases were approved by a dermatologist and registered in the dermatology department and Molecular Dermatology Research Center affiliated with Shiraz University of Medical Sciences, Shiraz, Iran. A researcher-made data gathering form, including knowledge, beliefs, practice, and the experience of the safety of TCIM, was used to collect the data. Interviews were done by phone calls, and oral consent was obtained from patients or their parents. Overall, 68 patients were included in this study. In this regard, 79.4% of the patients used TCIM by themselves or their families to manage EB. Approximately, half of the patients were not aware of the effects of the herbal medicines they used. Among medicinal plants, chicory (20.6%), thyme (16.2%), and Persian cornflower (14.7%) had the most consumption. More than half of these patients believed that medicinal plants were a less harmful treatment, and 48.5% considered them effective. In conclusion, the study revealed high medicinal plant usage among EB patients, but limited knowledge about their effectiveness. Public awareness about the benefits and risks of these remedies needs to be increased.
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| format | Article |
| id | doaj-art-5038597cd22f47468245603ee6819e3d |
| institution | Kabale University |
| issn | 2476-5104 2476-5112 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Tehran University of Medical Sciences |
| record_format | Article |
| series | Traditional and Integrative Medicine |
| spelling | doaj-art-5038597cd22f47468245603ee6819e3d2025-02-09T09:11:25ZengTehran University of Medical SciencesTraditional and Integrative Medicine2476-51042476-51122024-12-019410.18502/tim.v9i4.17470The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis BullosaMohammad Mahdi Parvizi0Nasrin Saki1Ehsan Amiri-Ardekani2Parisa Ahmadfard3Mehdi Pasalar4Molecular Dermatology Research Center, Shiraz University of Medical Sciences, Shiraz, Iran AND Research Center for Traditional Medicine and History of Medicine, Shiraz University of Medical Sciences, Shiraz, Iran AND Smart University of Medical Sciences, Tehran, Iran AND Persian Medicine Network (PMN), Universal Scientific Education and Research Network (USERN), Tehran, IranMolecular Dermatology Research Center, Shiraz University of Medical Sciences, Shiraz, Iran AND Department of Dermatology, School of Medicine, Shiraz University of Medical Sciences, Shiraz, IranResearch Center for Traditional Medicine and History of Medicine, Shiraz University of Medical Sciences, Shiraz, Iran AND Student Research Committee, Shiraz University of Medical Sciences, Shiraz, Iran AND Department of Phytopharmaceuticals (Traditional Pharmacy), Faculty of Pharmacy, Shiraz University of Medical Sciences, Shiraz, IranStudent Research Committee, Shiraz University of Medical Sciences, Shiraz, IranResearch Center for Traditional Medicine and History of Medicine, Shiraz University of Medical Sciences, Shiraz, Iran Epidermolysis bullosa (EB) is an inherited disease that causes widespread symptoms characterized by extreme epithelial fragility. This study examined traditional, complementary, and integrative medicine (TCIM) usage among EB patients referred to clinics at Shiraz University of Medical Sciences between 2019 and 2020. We enrolled the patients with EB whose diseases were approved by a dermatologist and registered in the dermatology department and Molecular Dermatology Research Center affiliated with Shiraz University of Medical Sciences, Shiraz, Iran. A researcher-made data gathering form, including knowledge, beliefs, practice, and the experience of the safety of TCIM, was used to collect the data. Interviews were done by phone calls, and oral consent was obtained from patients or their parents. Overall, 68 patients were included in this study. In this regard, 79.4% of the patients used TCIM by themselves or their families to manage EB. Approximately, half of the patients were not aware of the effects of the herbal medicines they used. Among medicinal plants, chicory (20.6%), thyme (16.2%), and Persian cornflower (14.7%) had the most consumption. More than half of these patients believed that medicinal plants were a less harmful treatment, and 48.5% considered them effective. In conclusion, the study revealed high medicinal plant usage among EB patients, but limited knowledge about their effectiveness. Public awareness about the benefits and risks of these remedies needs to be increased. https://jtim.tums.ac.ir/index.php/jtim/article/view/1309Epidermolysis BullosaTraditional medicineComplementary therapiesHerbal medicinePersian medicine |
| spellingShingle | Mohammad Mahdi Parvizi Nasrin Saki Ehsan Amiri-Ardekani Parisa Ahmadfard Mehdi Pasalar The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis Bullosa Traditional and Integrative Medicine Epidermolysis Bullosa Traditional medicine Complementary therapies Herbal medicine Persian medicine |
| title | The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis Bullosa |
| title_full | The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis Bullosa |
| title_fullStr | The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis Bullosa |
| title_full_unstemmed | The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis Bullosa |
| title_short | The Prevalence of Using Traditional, Complementary, and Integrative Medicine by Patients with Epidermolysis Bullosa |
| title_sort | prevalence of using traditional complementary and integrative medicine by patients with epidermolysis bullosa |
| topic | Epidermolysis Bullosa Traditional medicine Complementary therapies Herbal medicine Persian medicine |
| url | https://jtim.tums.ac.ir/index.php/jtim/article/view/1309 |
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