Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme

Introduction One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic fa...

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Main Authors: Stuart Logan, Ruth Gilbert, Tamsin Ford, Johnny Downs, Jugnoo Rahi, Ania Zylbersztejn, Katie Harron, Kate Boddy, Bianca De Stavola, Vincent Nguyen, Isaac Winterburn, Kate Lewis, Lucy Karwatowska, Lorraine Dearden, Sarah Barnes, Jacob Matthews, Matthew Lilliman, Jennifer Saxton, Antony Stone, Kristine Black-Hawkins
Format: Article
Language:English
Published: BMJ Publishing Group 2023-11-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/13/11/e072531.full
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author Stuart Logan
Ruth Gilbert
Tamsin Ford
Johnny Downs
Jugnoo Rahi
Ania Zylbersztejn
Katie Harron
Kate Boddy
Bianca De Stavola
Vincent Nguyen
Isaac Winterburn
Kate Lewis
Lucy Karwatowska
Lorraine Dearden
Sarah Barnes
Jacob Matthews
Matthew Lilliman
Jennifer Saxton
Antony Stone
Kristine Black-Hawkins
author_facet Stuart Logan
Ruth Gilbert
Tamsin Ford
Johnny Downs
Jugnoo Rahi
Ania Zylbersztejn
Katie Harron
Kate Boddy
Bianca De Stavola
Vincent Nguyen
Isaac Winterburn
Kate Lewis
Lucy Karwatowska
Lorraine Dearden
Sarah Barnes
Jacob Matthews
Matthew Lilliman
Jennifer Saxton
Antony Stone
Kristine Black-Hawkins
author_sort Stuart Logan
collection DOAJ
description Introduction One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic factors. There is scant evidence on whether SEN provision improves health and education outcomes.Methods The Health Outcomes of young People in Education (HOPE) research programme uses administrative data from the Education and Child Health Insights from Linked Data—ECHILD—which contains data from all state schools, and contacts with National Health Service hospitals in England, to explore variation in SEN provision and its impact on health and education outcomes. This umbrella protocol sets out analyses across four work packages (WP). WP1 defined a range of ‘health phenotypes’, that is health conditions expected to need SEN provision in primary school. Next, we describe health and education outcomes (WP1) and individual, school-level and area-level factors affecting variation in SEN provision across different phenotypes (WP2). WP3 assesses the impact of SEN provision on health and education outcomes for specific health phenotypes using a range of causal inference methods to account for confounding factors and possible selection bias. In WP4 we review local policies and synthesise findings from surveys, interviews and focus groups of service users and providers to understand factors associated with variation in and experiences of identification, assessment and provision for SEN. Triangulation of findings on outcomes, variation and impact of SEN provision for different health phenotypes in ECHILD, with experiences of SEN provision will inform interpretation of findings for policy, practice and families and methods for future evaluation.Ethics and dissemination Research ethics committees have approved the use of the ECHILD database and, separately, the survey, interviews and focus groups of young people, parents and service providers. These stakeholders will contribute to the design, interpretation and communication of findings.
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spelling doaj-art-72f36c5ace8c4f7fa635fa3933facac82025-02-11T13:25:09ZengBMJ Publishing GroupBMJ Open2044-60552023-11-01131110.1136/bmjopen-2023-072531Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programmeStuart Logan0Ruth Gilbert1Tamsin Ford2Johnny Downs3Jugnoo Rahi4Ania Zylbersztejn5Katie Harron6Kate Boddy7Bianca De Stavola8Vincent Nguyen9Isaac Winterburn10Kate Lewis11Lucy Karwatowska12Lorraine Dearden13Sarah Barnes14Jacob Matthews15Matthew Lilliman16Jennifer Saxton17Antony Stone18Kristine Black-Hawkins194 Child Health, University of Exeter Medical School, Exeter, UKGreat Ormond Street Institute of Child Health, UCL, London, UKprofessor of child and adolescent psychiatry3 South London and Maudsley NHS Foundation Trust, NIHR Maudsley Biomedical Research Centre, London, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKDepartment of Health and Community Sciences, University of Exeter Medical School, Exeter, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKNeurosurgery, University of Southern California, Los Angeles, California, USADepartment of Psychiatry, University of Cambridge, Cambridge, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKUCL Social Research Institute, UCL, London, UKDepartment of Psychiatry, University of Cambridge, Cambridge, UKDepartment of Psychiatry, University of Cambridge, Cambridge, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKPsychiatry, University of Cambridge, Cambridge, UKUCL Great Ormond Street Institute of Child Health, UCL, London, UKFaculty of Education, University of Cambridge, Cambridge, UKIntroduction One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic factors. There is scant evidence on whether SEN provision improves health and education outcomes.Methods The Health Outcomes of young People in Education (HOPE) research programme uses administrative data from the Education and Child Health Insights from Linked Data—ECHILD—which contains data from all state schools, and contacts with National Health Service hospitals in England, to explore variation in SEN provision and its impact on health and education outcomes. This umbrella protocol sets out analyses across four work packages (WP). WP1 defined a range of ‘health phenotypes’, that is health conditions expected to need SEN provision in primary school. Next, we describe health and education outcomes (WP1) and individual, school-level and area-level factors affecting variation in SEN provision across different phenotypes (WP2). WP3 assesses the impact of SEN provision on health and education outcomes for specific health phenotypes using a range of causal inference methods to account for confounding factors and possible selection bias. In WP4 we review local policies and synthesise findings from surveys, interviews and focus groups of service users and providers to understand factors associated with variation in and experiences of identification, assessment and provision for SEN. Triangulation of findings on outcomes, variation and impact of SEN provision for different health phenotypes in ECHILD, with experiences of SEN provision will inform interpretation of findings for policy, practice and families and methods for future evaluation.Ethics and dissemination Research ethics committees have approved the use of the ECHILD database and, separately, the survey, interviews and focus groups of young people, parents and service providers. These stakeholders will contribute to the design, interpretation and communication of findings.https://bmjopen.bmj.com/content/13/11/e072531.full
spellingShingle Stuart Logan
Ruth Gilbert
Tamsin Ford
Johnny Downs
Jugnoo Rahi
Ania Zylbersztejn
Katie Harron
Kate Boddy
Bianca De Stavola
Vincent Nguyen
Isaac Winterburn
Kate Lewis
Lucy Karwatowska
Lorraine Dearden
Sarah Barnes
Jacob Matthews
Matthew Lilliman
Jennifer Saxton
Antony Stone
Kristine Black-Hawkins
Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
BMJ Open
title Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_full Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_fullStr Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_full_unstemmed Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_short Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_sort evaluation of variation in special educational needs provision and its impact on health and education using administrative records for england umbrella protocol for a mixed methods research programme
url https://bmjopen.bmj.com/content/13/11/e072531.full
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