Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping Review
Introduction: Addressing challenges due to demographic changes and the quest for improved value in healthcare requires an extended integrated approach to care that fosters collaboration between all stakeholders, especially within collaboration supporting cognitively impaired patients. The aim is to...
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| Format: | Article |
| Language: | English |
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Ubiquity Press
2025-01-01
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| Series: | International Journal of Integrated Care |
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| Online Access: | https://account.ijic.org/index.php/up-j-ijic/article/view/8577 |
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| author | Eskil Degsell Lina Al-Adili Petter Gustavsson Mats Brommels Petra Dannapfel |
| author_facet | Eskil Degsell Lina Al-Adili Petter Gustavsson Mats Brommels Petra Dannapfel |
| author_sort | Eskil Degsell |
| collection | DOAJ |
| description | Introduction: Addressing challenges due to demographic changes and the quest for improved value in healthcare requires an extended integrated approach to care that fosters collaboration between all stakeholders, especially within collaboration supporting cognitively impaired patients. The aim is to review existing studies on interventions to improve communication and collaboration between such patients, their caregivers and healthcare staff. Methods: Following PRISMA guidelines, we systematically searched electronic databases Medline (OVID), CINAHL (Ebsco), and Web of Science (Clarivate) for peer-reviewed literature [2010–2020] focusing on intervention studies. Papers were excluded if not assessing the impact of interventions or only presenting a study protocol. Results: Twelve studies explored diverse approaches to social support, all with the aim of improving communication and collaboration among stakeholders, and identified three intervention types: supporting empowerment, promoting collaborative disease management, and coping, and enhancing communication and relationships. Discussion: The interventions employed various approaches and assessed a range of outcomes, demonstrating the benefits of enhancing communication and collaboration among stakeholders. Yet only a few studies included the full triad of partners in care. Conclusion: There is still much to be done to achieve the extended integration of care services and support that will benefit from patient and caregiver involvement. |
| format | Article |
| id | doaj-art-758eb07b9af8419b925bcb0080aeb3f3 |
| institution | Kabale University |
| issn | 1568-4156 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Ubiquity Press |
| record_format | Article |
| series | International Journal of Integrated Care |
| spelling | doaj-art-758eb07b9af8419b925bcb0080aeb3f32025-02-11T05:33:50ZengUbiquity PressInternational Journal of Integrated Care1568-41562025-01-01255510.5334/ijic.85778473Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping ReviewEskil Degsell0https://orcid.org/0009-0001-8764-628XLina Al-Adili1https://orcid.org/0000-0003-1650-779XPetter Gustavsson2https://orcid.org/0000-0001-9571-9349Mats Brommels3https://orcid.org/0000-0003-1754-6547Petra Dannapfel4https://orcid.org/0009-0007-6018-0903Swedish Brain Tumour Association; Neuro-Oncology Clinical Research, Innovation, Implementation and Collaboration, Karolinska University Hospital, Stockholm; Department of Microbiology, Tumour and Cell Biology, Karolinska Institutet, StockholmMedical Management Centre, Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, StockholmDivision of Psychology, Department of Clinical Neuroscience, Karolinska Institutet, StockholmMedical Management Centre, Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, StockholmDepartment of Health, Medicine and Caring Sciences, Linköping University, Linköping; Hospital Group West, Western Gothia Healthcare Region, GothenburgIntroduction: Addressing challenges due to demographic changes and the quest for improved value in healthcare requires an extended integrated approach to care that fosters collaboration between all stakeholders, especially within collaboration supporting cognitively impaired patients. The aim is to review existing studies on interventions to improve communication and collaboration between such patients, their caregivers and healthcare staff. Methods: Following PRISMA guidelines, we systematically searched electronic databases Medline (OVID), CINAHL (Ebsco), and Web of Science (Clarivate) for peer-reviewed literature [2010–2020] focusing on intervention studies. Papers were excluded if not assessing the impact of interventions or only presenting a study protocol. Results: Twelve studies explored diverse approaches to social support, all with the aim of improving communication and collaboration among stakeholders, and identified three intervention types: supporting empowerment, promoting collaborative disease management, and coping, and enhancing communication and relationships. Discussion: The interventions employed various approaches and assessed a range of outcomes, demonstrating the benefits of enhancing communication and collaboration among stakeholders. Yet only a few studies included the full triad of partners in care. Conclusion: There is still much to be done to achieve the extended integration of care services and support that will benefit from patient and caregiver involvement.https://account.ijic.org/index.php/up-j-ijic/article/view/8577integrated careperson centred careneurological diseasescognitive impairments |
| spellingShingle | Eskil Degsell Lina Al-Adili Petter Gustavsson Mats Brommels Petra Dannapfel Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping Review International Journal of Integrated Care integrated care person centred care neurological diseases cognitive impairments |
| title | Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping Review |
| title_full | Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping Review |
| title_fullStr | Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping Review |
| title_full_unstemmed | Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping Review |
| title_short | Extending Integration: Interventions Supporting Communication and Collaboration Between Patients with Neurological Diseases, Their Informal Caregivers and Healthcare Staff – a Scoping Review |
| title_sort | extending integration interventions supporting communication and collaboration between patients with neurological diseases their informal caregivers and healthcare staff a scoping review |
| topic | integrated care person centred care neurological diseases cognitive impairments |
| url | https://account.ijic.org/index.php/up-j-ijic/article/view/8577 |
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