Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK
Purpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and ed...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2024-01-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/14/1/e076711.full |
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| author | Amrita Bandyopadhyay Sarah Davies Michaela James Sinead Brophy Sam Dredge Hope Jones Mike J Seaborne Natasha L Kennedy Adele Battaglia |
| author_facet | Amrita Bandyopadhyay Sarah Davies Michaela James Sinead Brophy Sam Dredge Hope Jones Mike J Seaborne Natasha L Kennedy Adele Battaglia |
| author_sort | Amrita Bandyopadhyay |
| collection | DOAJ |
| description | Purpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage.Participants Descriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine.Findings to date The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5–11.Future plans Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. Future research includes exploring the long-term implications of COVID-19 on child health and development, and examining the impact of parental work environment on child health and development. |
| format | Article |
| id | doaj-art-c0d398205bb24e4ea1184b18d8fdd7fd |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2024-01-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-c0d398205bb24e4ea1184b18d8fdd7fd2025-02-12T08:50:10ZengBMJ Publishing GroupBMJ Open2044-60552024-01-0114110.1136/bmjopen-2023-076711Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UKAmrita Bandyopadhyay0Sarah Davies1Michaela James2Sinead Brophy3Sam Dredge4Hope Jones5Mike J Seaborne6Natasha L Kennedy7Adele Battaglia8National Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UKBetsi Cadwaladr University Health Board, Bangor, UK1 National Centre for Population Health and Wellbeing Research, Swansea University, Swansea, UKHealth Data Research UK, London, UKNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK1 National Centre for Population Health and Wellbeing Research, Swansea University, Swansea, UKNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UKNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UKPatient and Public Involvement Representative, Swansea, UKPurpose Using Wales’s national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage.Participants Descriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine.Findings to date The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5–11.Future plans Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. Future research includes exploring the long-term implications of COVID-19 on child health and development, and examining the impact of parental work environment on child health and development.https://bmjopen.bmj.com/content/14/1/e076711.full |
| spellingShingle | Amrita Bandyopadhyay Sarah Davies Michaela James Sinead Brophy Sam Dredge Hope Jones Mike J Seaborne Natasha L Kennedy Adele Battaglia Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK BMJ Open |
| title | Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK |
| title_full | Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK |
| title_fullStr | Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK |
| title_full_unstemmed | Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK |
| title_short | Cohort profile: Born in Wales—a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK |
| title_sort | cohort profile born in wales a birth cohort with maternity parental and child data linkage for life course research in wales uk |
| url | https://bmjopen.bmj.com/content/14/1/e076711.full |
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