Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) study
Objective Young people moving from child and adolescent mental health services (CAMHS) to adult mental health services (AMHS) are faced with significant challenges. To improve this state of affairs, there needs to be a recognition of the problem and initiatives and an urgent requirement for appropri...
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2020-06-01
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| author | Fiona McNicholas Dieter Wolke Jason Madan Jatinder Singh Federico Fiori Paramala Santosh Jane Warwick Helena Tuomainen Swaran Singh Laura Adams Mathilde Mastroianni Natalie Heaney Kate Lievesley Ilyas Sagar-Ouriaghli Giovanni Allibrio Rebecca Appleton Nikolina Davidović Giovanni de Girolamo Gwen Dieleman Katarina Dodig-Ćurković Tomislav Franić Charlotte Gatherer Suzanne Gerritsen Elisa Gheza Lidia Manenti Athanasios Maras Francesco Margari Adriana Pastore Moli Paul Diane Purper-Ouakil Francesco Rinaldi Vehbi Sakar Ulrike Schulze Giulia Signorini Cathy Street Priya Tah Sabine Tremmery Amanda Tuffrey Frank Verhulst Anna Wilson |
| author_facet | Fiona McNicholas Dieter Wolke Jason Madan Jatinder Singh Federico Fiori Paramala Santosh Jane Warwick Helena Tuomainen Swaran Singh Laura Adams Mathilde Mastroianni Natalie Heaney Kate Lievesley Ilyas Sagar-Ouriaghli Giovanni Allibrio Rebecca Appleton Nikolina Davidović Giovanni de Girolamo Gwen Dieleman Katarina Dodig-Ćurković Tomislav Franić Charlotte Gatherer Suzanne Gerritsen Elisa Gheza Lidia Manenti Athanasios Maras Francesco Margari Adriana Pastore Moli Paul Diane Purper-Ouakil Francesco Rinaldi Vehbi Sakar Ulrike Schulze Giulia Signorini Cathy Street Priya Tah Sabine Tremmery Amanda Tuffrey Frank Verhulst Anna Wilson |
| author_sort | Fiona McNicholas |
| collection | DOAJ |
| description | Objective Young people moving from child and adolescent mental health services (CAMHS) to adult mental health services (AMHS) are faced with significant challenges. To improve this state of affairs, there needs to be a recognition of the problem and initiatives and an urgent requirement for appropriate tools for measuring readiness and outcomes at the transfer boundary (16–18 years of age in Europe). The objective of this study was to develop and validate the Transition Readiness and Appropriateness Measure (TRAM) for assessing a young person’s readiness for transition, and their outcomes at the transfer boundary.Design MILESTONE prospective study.Setting Eight European Union (EU) countries participating in the EU-funded MILESTONE study.Participants The first phase (MILESTONE validation study) involved 100 adolescents (pre-transition), young adults (post-transition), parents/carers and both CAMHS and AMHS clinicians. The second phase (MILESTONE cohort study and nested cluster randomised trial) involved over 1000 young people.Results The development of the TRAM began with a literature review on transitioning and a review of important items regarding transition by a panel of 34 mental health experts. A list of 64 items of potential importance were identified, which together comprised the TRAM. The psychometric properties of the different versions of the TRAM were evaluated and showed that the TRAM had good reliability for all versions and low-to-moderate correlations when compared with other established instruments and a well-defined factor structure. The main results of the cohort study with the nested cluster randomised trial are not reported.Conclusion The TRAM is a reliable instrument for assessing transition readiness and appropriateness. It highlighted the barriers to a successful transition and informed clinicians, identifying areas which clinicians on both sides of the transfer boundary can work on to ease the transition for the young person.Trial registration number ISRCTN83240263 (Registered 23 July 2015), NCT03013595 (Registered 6 January 2017); Pre-results. |
| format | Article |
| id | doaj-art-d74a5017dfeb45528ddb56ab86204944 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-06-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-d74a5017dfeb45528ddb56ab862049442025-02-12T01:40:17ZengBMJ Publishing GroupBMJ Open2044-60552020-06-0110610.1136/bmjopen-2019-033324Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) studyFiona McNicholas0Dieter Wolke1Jason Madan2Jatinder Singh3Federico Fiori4Paramala Santosh5Jane Warwick6Helena Tuomainen7Swaran Singh8Laura Adams9Mathilde Mastroianni10Natalie Heaney11Kate Lievesley12Ilyas Sagar-Ouriaghli13Giovanni Allibrio14Rebecca Appleton15Nikolina Davidović16Giovanni de Girolamo17Gwen Dieleman18Katarina Dodig-Ćurković19Tomislav Franić20Charlotte Gatherer21Suzanne Gerritsen22Elisa Gheza23Lidia Manenti24Athanasios Maras25Francesco Margari26Adriana Pastore27Moli Paul28Diane Purper-Ouakil29Francesco Rinaldi30Vehbi Sakar31Ulrike Schulze32Giulia Signorini33Cathy Street34Priya Tah35Sabine Tremmery36Amanda Tuffrey37Frank Verhulst38Anna Wilson39School of Medicine and Medical Science, University College Dublin, Dublin, Ireland20 Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK4 University of Warwick, Warwick Medical School, Coventry, Warwick, UKDepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King`s College London, London, UKDepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King`s College London, London, UKDepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King`s College London, London, UKKing’s Cancer Prevention Group, School of Cancer and Pharmaceutical Sciences, King`s College London, London, UK9 National Institute for Health and Care Research, Applied Research Collaboration (ARC) West Midlands, University of Warwick, Coventry, UKMental Health and Wellbeing, Warwick Medical School, University of Warwick, Coventry, UKDepartment of Surgery, Division of Trauma, Surgical Critical Care, Burns and Acute Care Surgery, University of California San Diego, San Diego, California, USADepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King`s College London, London, UKDepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King`s College London, London, UKDepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King`s College London, London, UKDepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King`s College London, London, UKUnit of Neuropsychiatry, ASST Spedali Civili di Brescia Dipartimento di Salute Mentale, Brescia, Lombardia, Italy1 NIHR Mental Health Policy Research Unit, UCL, London, UKUniversity Hospital Center Split, Split, CroatiaUnit of Epidemiological and Evaluation Psychiatry, IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, Italy3 Department of Child and Adolescent Psychiatry and Psychology, Erasmus Medical Center, Rotterdam, The NetherlandsFaculty for Dental Care and Health, Osijek, Croatia7 Department of Psychiatry, Clinical Hospital Center Split, Split, CroatiaWarwick Medical School, University of Warwick, Coventry, UK3 Department of Child and Adolescent Psychiatry and Psychology, Erasmus Medical Center, Rotterdam, The NetherlandsNeuropsychiatry Service of Childhood and Adolescence, Mental Health Department, ASST della Valcamonica, Breno, Lombardia, ItalyUnit of Neuropsychiatry, ASST Spedali Civili di Brescia Dipartimento di Salute Mentale, Brescia, Lombardia, Italy4 Yulius Academy, Yulius Mental Health Organization, Dordrecht, The NetherlandsDepartment of Basic Medical Sciences, Neuroscience and Sense Organs, University of Bari, Bari, Puglia, ItalyDepartment of Basic Medical Sciences, Neuroscience and Sense Organs, University of Bari, Bari, Puglia, ItalyWarwick Medical School, University of Warwick, Coventry, UKHôpital Saint Eloi, Médecine Psychologique de l’Enfant et de l’Adolescent, Centre Hospitalier Regional Universitaire de Montpellier, Montpellier, Languedoc-Roussillon, FranceNeuropsychiatry Service of Childhood and Adolescence, Mental Health Department, ASST della Valcamonica, Breno, Lombardia, ItalyDepartment of Child and Adolescent Psychiatry/Psychotherapy, Universitatsklinikum Ulm, Ulm, Baden-Württemberg, GermanyDepartment of Child and Adolescent Psychiatry/Psychotherapy, Universitatsklinikum Ulm, Ulm, Baden-Württemberg, GermanyIRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, ItalyWarwick Medical School, University of Warwick, Coventry, UKWarwick Medical School, University of Warwick, Coventry, UK15 Department of Neurosciences, KU Leuven, Leuven, BelgiumWarwick Medical School, University of Warwick, Coventry, UKDepartment of Child and Adolescent Psychiatry and Psychology, Erasmus MC, Rotterdam, Zuid-Holland, The Netherlands2University of Glasgow Medical School, Glasgow, UKObjective Young people moving from child and adolescent mental health services (CAMHS) to adult mental health services (AMHS) are faced with significant challenges. To improve this state of affairs, there needs to be a recognition of the problem and initiatives and an urgent requirement for appropriate tools for measuring readiness and outcomes at the transfer boundary (16–18 years of age in Europe). The objective of this study was to develop and validate the Transition Readiness and Appropriateness Measure (TRAM) for assessing a young person’s readiness for transition, and their outcomes at the transfer boundary.Design MILESTONE prospective study.Setting Eight European Union (EU) countries participating in the EU-funded MILESTONE study.Participants The first phase (MILESTONE validation study) involved 100 adolescents (pre-transition), young adults (post-transition), parents/carers and both CAMHS and AMHS clinicians. The second phase (MILESTONE cohort study and nested cluster randomised trial) involved over 1000 young people.Results The development of the TRAM began with a literature review on transitioning and a review of important items regarding transition by a panel of 34 mental health experts. A list of 64 items of potential importance were identified, which together comprised the TRAM. The psychometric properties of the different versions of the TRAM were evaluated and showed that the TRAM had good reliability for all versions and low-to-moderate correlations when compared with other established instruments and a well-defined factor structure. The main results of the cohort study with the nested cluster randomised trial are not reported.Conclusion The TRAM is a reliable instrument for assessing transition readiness and appropriateness. It highlighted the barriers to a successful transition and informed clinicians, identifying areas which clinicians on both sides of the transfer boundary can work on to ease the transition for the young person.Trial registration number ISRCTN83240263 (Registered 23 July 2015), NCT03013595 (Registered 6 January 2017); Pre-results.https://bmjopen.bmj.com/content/10/6/e033324.full |
| spellingShingle | Fiona McNicholas Dieter Wolke Jason Madan Jatinder Singh Federico Fiori Paramala Santosh Jane Warwick Helena Tuomainen Swaran Singh Laura Adams Mathilde Mastroianni Natalie Heaney Kate Lievesley Ilyas Sagar-Ouriaghli Giovanni Allibrio Rebecca Appleton Nikolina Davidović Giovanni de Girolamo Gwen Dieleman Katarina Dodig-Ćurković Tomislav Franić Charlotte Gatherer Suzanne Gerritsen Elisa Gheza Lidia Manenti Athanasios Maras Francesco Margari Adriana Pastore Moli Paul Diane Purper-Ouakil Francesco Rinaldi Vehbi Sakar Ulrike Schulze Giulia Signorini Cathy Street Priya Tah Sabine Tremmery Amanda Tuffrey Frank Verhulst Anna Wilson Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) study BMJ Open |
| title | Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) study |
| title_full | Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) study |
| title_fullStr | Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) study |
| title_full_unstemmed | Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) study |
| title_short | Validation of the Transition Readiness and Appropriateness Measure (TRAM) for the Managing the Link and Strengthening Transition from Child to Adult Mental Healthcare in Europe (MILESTONE) study |
| title_sort | validation of the transition readiness and appropriateness measure tram for the managing the link and strengthening transition from child to adult mental healthcare in europe milestone study |
| url | https://bmjopen.bmj.com/content/10/6/e033324.full |
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